Background
Support groups for people with metastatic cancer address critical psychosocial needs yet differ substantially from groups designed for those treated with curative intent.1 These differences create facilitation challenges and require competencies beyond standard support group training.2 To address this gap, MBC Action Australia undertook a national consultation to inform the development of a metastatic cancer-specific facilitator training curriculum (Figures 1 and 2).
Methods
This mixed-methods study consulted with facilitators/managers of metastatic cancer support groups and experts in supportive care. Consultation comprised: (1) online survey (n=30); (2) four online focus groups (n=21); and (3) a full-day expert consensus workshop and interviews (n=11). Survey data were analysed descriptively; focus group data were analysed thematically to identify priority skills, challenges, and training needs. Consensus on core curriculum elements was reached through discussion and prioritisation exercises at the workshop.
Results
Survey respondents reported confidence in general facilitation skills but identified gaps in areas unique to metastatic contexts. One-third expressed a need for further training in managing death and dying (35%), fostering cohesion (31%), and maintaining boundaries (31%). Focus groups highlighted the emotional intensity of metastatic groups and the complexity of managing diverse illness trajectories, cultural perspectives, and misinformation. Participants emphasised the need for advanced communication skills, trauma-informed approaches, and strategies for facilitator self-care. The expert workshop synthesised findings into a modular curriculum framework comprising:
Supporting activities, including a community of practice, mentorship, and access to practical tools, were endorsed to ensure ongoing professional development and sustainability.
Conclusion
The study confirms the need for metastatic cancer-specific facilitator training and provides an evidence-informed framework for curriculum development. Stage 2 will focus on developing, piloting and evaluating the training modules.