Aims: Finding My Way (FMW) is a 6-module digital intervention proven to reduce psychological distress following early-stage cancer diagnosis. However, participant engagement is often suboptimal, with barriers including treatment side effects (e.g., fatigue) and insufficient time to use the program. Initial co-design with psycho-oncology clinicians suggested reducing the program to 3 modules to reflect typical participant engagement, while amalgamating key content from all modules to ensure relevance across survivorship phases. This study aimed to finalise the reduced-dose version of FMW (Finding My Way – Micro; FMW-M) via further co-design with individuals living with cancer.
Methods: A qualitative co-design study was conducted with 30 adult consumers living with cancer. Participants were recruited via social media advertisements and cancer advocacy organisations. Participants attended a focus group or individual interview to provide feedback on the FMW-M intervention prototype. Interviews were audio recorded, transcribed, and underwent content analysis using NVivo.
Results: Findings indicate that consumers largely endorsed the current FMW-M prototype; however, they recommended additional content on treatment-related physical changes (e.g., hair loss, weight changes), nutrition challenges (e.g., changes to appetite and taste), and links to psychological support resources. A large proportion of participants suggested including links to the original FMW program for individuals interested in delving deeper into the content and expressed a preference for changing terminology from “survivor stories” to “lived experience”.
Conclusions: Consumer co-design provided valuable insights and has been integral to the program’s development. Findings indicate the penultimate FMW-M prototype is acceptable and appealing to consumers, while also identifying opportunities for enhancement. Notably, consumers highlighted the need for greater inclusion of treatment-related physical impacts, contrasting with clinicians who considered this area adequately addressed in standard care. The refined FMW-M intervention will next undergo usability testing.