Aim
People with head and neck cancer (HNC) experience complex, multidimensional challenges due to the physical, functional, psychosocial, and existential impacts of HNC and its treatment. The aims of this scoping review are: (1) to map the available patient-reported outcome measures (PROMs), patient experiences, and unmet needs literature in the Australian context; (2) identify gaps in the existing literature for Australian priority populations; and (3) inform future survivorship research and service for Australian people living with and beyond HNC.
Methods
This scoping review followed the Joanna Briggs Institute (JBI) methodology for scoping review. A search for English-language publications was conducted in seven databases, (PubMed, EMBASE, PsycINFO, CINAHL, Scopus, Informit, and Web of Science), supplemented by a search of the grey literature. Title/abstract and full-text screening was conducted independently by two reviewers. Eligible studies were publications involving adults (≥18 years) with a diagnosis of HNC recruited in Australia reporting PROMs, patient experiences or unmet needs pertaining to cancer survivorship or experiences in an Australian healthcare setting. Data will be systematically extracted and synthesized to detail study descriptions, produce a narrative synthesis, and generate an evidence gap map, with particular attention to priority populations as defined by Cancer Australia.
Results
The search identified 4,727 records for screening; of these, 254 full texts were assessed and 112 included in the data extraction. Data extraction is currently underway, and full results will be presented at the conference.
Conclusions
This scoping review will map the available evidence and identify gaps in the understanding of PROMs, patient experience and unmet supportive care needs, and specifically address the gaps pertaining to Australian priority populations. Results will inform future selection of PROMs, equitable supportive care research, and survivorship care for people with HNC.